Life with Ataxia

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From the book

I’ve been told that I am "unique" and even “blessed”, not many people have Ataxia. I do. This is my story, my journey, with this rare and life-altering disease. I hope you find this inspirational and uplifting.


I was born on a cold Thanksgiving day, 1971 in Arlington Heights, IL. My mom always said I was her “big turkey”. Little did I know that this “big turkey” was in store for a wild ride through life.  Twisting and turning, by no fault of mine, but of my disease that was hidden inside me for many years before I ever knew what Ataxia was and it’s devastating effect is has on the human body.

What is Ataxia

Ataxia is a rare disease, in the US, only about .04% of people have it, and most Ataxia is genetic, Ataxia mostly affects the Cerebellum. Here is how to proniunce Ataxia (a Taxi a)


The Cerebellum has 2 sides with a membrane going right up the center, it sits at the back part of your brain. The Cerebellum controls coordination, balance, speech, swallowing, all voluntary motor movements, equilibrium and muscle toan. "It's a Brain Thing" As you do those things, your Cerebellum will help with the controls to be smoother and require less conscious effort to preform.

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Ataxia Book (pdf)

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